Alzheimer’s Research UK has funded more than £27.3 million of research to help advance understanding of frontotemporal dementia it’s causes, diagnosis and treatment.

People diagnosed with frontotemporal dementia, and other types of dementia can take part in research studies. People living with dementia have a vital role to play in helping scientists undertsand more about dementia, and to test new treatments, therapies and methods of diagnosis. You can register to find our which research studies you may be suitable to take part in via Join Dementia Research.


Our research is looking at the proteins that build up in the brain in FTD and the risk factors for developing the disease. This work will help scientists to understand what causes FTD, diagnose it more accurately and develop new treatments.

Backed by our passionate scientists and supporters, we’re challenging the way people think about dementia, bringing together the people and organisations who can speed up progress, and investing in research to make breakthroughs possible.

What is Frontotemporal dementia?

Information in this introductory booklet is for anyone who wants to know more about frontotemporal dementia (FTD). This includes people living with FTD, their carers, families and friends.


Research projects

This information was updated in January 2020 and is due for review in January 2022. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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Dementia Research Infoline

Want to know more about current research? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111