Privacy policy, cookies and your data

Alzheimer’s Research UK is the UK’s leading research charity dedicated to making life-changing breakthroughs in dementia research.

Our registered charity numbers are 1077089 in England and Wales, and SC042474 in Scotland. Alzheimer’s Research Trading Limited (registered company number 03880026) is a wholly owned subsidiary of Alzheimer’s Research UK which trades on our behalf. When we use the word ‘we’ in this policy, it means both the charity and its subsidiary.

We strive for the highest possible standards in our fundraising, are registered with the Fundraising Regulator and are committed to complying with its Fundraising Promise.

ARUK is the data controller of any personal information that we collect about you. We are committed to protecting your privacy and keeping your personal data safe. If you have any questions about this policy, or about our use of your personal information, please email the enquiries team as stated above.

Information we obtain about you directly

This covers information that you have chosen to tell us directly yourself. When you get in touch with us to make a donation, request information or support us in any other way, we may process the following types of personal information about you:

• Name
• Contact details (e.g. address, landline and mobile number, email address).
• Your interactions with Alzheimer’s Research UK. This could include your donation history; your responses to our communications; information you’ve shared with us about why you have supported us; events, meetings and fundraising activities you’ve taken part in or shown an interested in; volunteering you’ve done to help us and gifts you’ve made in honour of others on our website.
• Financial information.
• Your country of residence.
• Date of birth.
• Any preferences about your interests and how you like to be contacted.

We do not usually ask you for sensitive or ‘special category’ personal data such as details of any disabilities that you have, your religion or belief and your sexual orientation unless there is a clear reason for us to do so. However we may need to ask for sensitive information about your health, for example, if you are participating in an event. You may also wish to share information about your health if you decide to speak out about your experience of dementia. If you do, we will always treat it sensitively and ask you on every occasion if you are still willing to share it further in the form of case studies or media interviews.

Any sensitive information shared through the Dementia Research Infoline will be treated confidentially as outlined in Section 9 of this Privacy Notice.

Information you give to us indirectly

This covers information that you don’t share with us directly but that is shared with us by other organisations with your permission. This might happen if you have used independent fundraising platforms (e.g. JustGiving or Virgin Money Giving) or if you’ve set up an online tribute page in memory of a loved one (e.g. Much Loved). We’ll only receive your information from these companies if you have given permission for them to share it with us.

We may also record and share information that you have shared with us publicly on social media (e.g. Facebook or Twitter). We may on occasion use your email address to communicate with you via social media sites, where you have provided us with that address. For example those supporters who signed up to take part in Running Down Dementia one year may receive notifications on their Facebook timeline explaining that Running Down Dementia is happening again.

We may ask your permission to review third party data about you through social channels, for example, your Twitter or Facebook feeds, to get to know you better and to provide more effective personalisation. Some of our services enable you to sign-in via a third party service, such as Facebook. If you choose to sign-in via a third party app, you will be presented with a dialogue box which will ask your permission to allow Alzheimer's Research UK to access your personal information (e.g. your full name, date of birth, email address and any other information you have made publicly accessible). Please note that any information that is not required by the particular service you have opted to use will not be retained.

If you have provided consent for another organisation to share your personal information with us, but you no longer wish to hear from us, you can change your mind at any time. Just contact us using the information at the top of the page.

Information about you obtained from third parties 

This covers information that has been shared with us about you by someone else, for example from a friend who wants to send you a gift or make a donation in your name.

We may also collect personal information about you from service providers, the press, search engines, social media (e.g. LinkedIn) and reputable public data sources (e.g. Companies House, BoardEx, the Charity Commission, Land Registry).  Personal information we may collect via these channels may include your job title, directorships, contact information, demographic data (including estimated income and property value), date and size of previous donations to other charities, details of philanthropic activities you engage in, etc. We may use this information to build a profile of you (i.e. your interests, preferences, demographics and level of potential donations) to enable us to tailor fundraising efforts and communications based on your circumstances and interests, and how likely you are to support Alzheimer’s Research UK’s work. This helps us understand our supporters better and helps us make appropriate requests for support or gifts to supporters who might be able and willing to give more than they already do, and ensures that we are making the best use of our resources.

We may combine information we have obtained about you from these third party sources with other information that we hold about you for this purpose and the purposes described in Section 3 below.

We may use the personal information we collect to:

• Provide you with the information, service or product you have asked for.
• Administer any donation you have given us, support your fundraising and process Gift Aid.
• Build a detailed picture of your interests and preferences so that we can tailor our services, communications and financial asks to suit you.
• Let you know about the latest research and how your support makes a difference, as well as ways you can get involved and help fund our life-changing work.
• Understand how you use and interact with our products and services (e.g. our website) to enable us to make improvements.
• Comply with legal and regulatory requirements and protect against fraud.
• Help diagnose problems with our website and server, administer our website, compile broad statistical data and update and maintain our website.
• Ensure security and detect and protect against fraud.
• Further our charitable aims.

As outlined in Section 2, we may use profiling and screening techniques to build a profile of you, including your interests, preferences, demographic information and potential ability to financially support our work in future. This helps us to tailor our asks for support, and identify and further engage those supporters who may be willing and able to provide a transformational gift to support life-changing research.

Your information is only used if we have legal grounds to do so which might be because you have provided consent; it is necessary to allow us to deal with your request, enquiry or purchase; we have a legal or regulatory obligation to do so; or the information is being used legitimately to further our charitable aims.

We do not swap, sell or rent your personal information to anyone.

As part of our day-to-day work, we may engage service providers who operate on our behalf. In these circumstances, they will only have access to the personal information they need to fulfil that service and will only use that information for the purposes for which they have been instructed by us. Examples of service providers include a printer who is personalising the communications we send to you or a payment provider who processes donations for us.

If we are asked to share your details with other organisations that aren’t our service providers, we will only do so if:  we have your permission; we have a legal or regulatory obligation to do so; we need to enforce any agreements we have with you or investigate any complaints; we need to protect the rights, property and safety of Alzheimer’s Research UK and its supporters; or we merge or link with another charity.

For the most part, your personal information will be stored in the UK. However, there may be rare occasions when your information is transferred outside the UK to areas with less strict data protection laws compared with those in the UK and the European Economic Area (EEA).

If this does happen, we take legally-required steps to make sure that adequate safeguards are in place to protect your personal information and privacy rights. If you would like a copy of these safeguards, please contact us using the details at the top of the page.

Without your support we simply wouldn’t exist and because of this we value every interaction we experience with you.  We believe it’s important to remember our history together especially if you get back in touch with us or leave us a gift in your Will.

However, as with all relationships, we know that things can change and we understand that you may choose to have a break from supporting Alzheimer’s Research UK.

Therefore, if we don’t hear from you at all after 3 years we will stop marketing to you and after 5 years of inactivity we will treat your data in accordance with our data retention policy which may mean deleting or archiving it. Please also be assured that we never store credit card details under any circumstances.

You have the right to request that we delete your details at any stage.

By Post: Alzheimer’s Research UK, 3 Riverside, Granta Park, Great Abington, Cambridge CB21 6AD

By Phone: 0300 111 5555 or 01223 824 500.

By Email: enquiries@alzheimersresearchuk.org

We talk to you on your terms. You have the right to opt-out of marketing and fundraising communications and you can change your contact preferences at any time. You may also opt-out of the profiling and screening described in Section 3.

To exercise any of these rights, or to change or update the information we hold about you, please contact our Supporter Care team using the details at the top of the page.  You can also click on the ‘unsubscribe’ button on all marketing and fundraising emails to opt-out of receiving future communications from us by email.

You may have the right to request access to, or deletion of, personal information we hold about you. You may also be able to restrict how we use your information, to object to processing as well as in certain circumstances the right to data portability. Please contact us if you would like to exercise any of these additional rights and we will assess your request on a case by case basis in line with Data Protection Law.

If you have a complaint about how we use your personal information, please contact us. If you are not satisfied with our response, you may lodge a complaint with the Information Commissioner’s Office.

This is the Cookie Policy for Alzheimer’s Research UK, accessible from https://alzheimersresearchuk.org

What Are Cookies

As is common practice with almost all professional websites this site uses cookies, which are tiny files that are downloaded to your computer, to improve your experience. This page describes what information they gather, how we use it and why we sometimes need to store these cookies. We will also share how you can prevent these cookies from being stored however this may downgrade or 'break' certain elements of this site’s functionality.

For more general information on cookies see the Wikipedia article on HTTP Cookies.

How We Use Cookies

We use cookies for a variety of reasons detailed below. Unfortunately, in most cases there are no industry standard options for disabling cookies without completely disabling the functionality and features they add to this site. It is recommended that you leave on all cookies if you are not sure whether you need them or not, in case they are used to provide a service that you use.

Disabling Cookies

You can prevent the setting of cookies by adjusting the settings on your browser (see your browser Help for how to do this). Be aware that disabling cookies will affect the functionality of this and many other websites that you visit. Disabling cookies will usually result in also disabling certain functionality and features of this site. Therefore, it is recommended that you do not disable cookies.
You can learn how to manage cookies on your web browser by following the Browser Cookies Guide.

The Cookies We Set

• Email newsletters related cookies
  This site offers newsletter or email subscription services and cookies may be used to remember if you are already registered and whether to show certain notifications which might only be valid to subscribed/unsubscribed users.
• Orders processing and donation related cookies
  This site offers e-commerce or payment facilities and some cookies are essential to ensure that your order or donation is remembered between pages so that we can process it properly.
• Forms related cookies
  When you submit data to us through a form such as those found on our event registration pages, contact pages or download forms, cookies may be set to remember your user details for future correspondence.
• Third Party Cookies
  In some special cases we also use cookies provided by trusted third parties. The following section details which third party cookies you might encounter through this site.
  • This site uses Google Analytics which is one of the most widespread and trusted analytics solutions on the web for helping us to understand how you use the site and ways that we can improve your experience. These cookies may track things such as how long you spend on the site and the pages that you visit so we can continue to produce engaging content.

    For more information on Google Analytics cookies, see the official Google Analytics page.

  • From time to time we test new features and make subtle changes to the way that the site is delivered. When we are still testing new features, these cookies may be used to ensure that you receive a consistent experience whilst on the site whilst ensuring we understand which optimisations our users appreciate the most.
  • The Google AdSense service we use to serve advertising uses a DoubleClick cookie to serve more relevant ads across the web and limit the number of times that a given ad is shown to you.

    For more information on Google AdSense and Analytics see the official Google Privacy & Terms site.

  • We also use social media buttons and/or plugins on this site that allow you to connect with your social network in various ways. For these to work the following social media sites including; Twitter, Facebook, YouTube, LinkedIn, Pinterest and Instagram, will set cookies through our site which may be used to enhance your profile on their site or contribute to the data they hold for various purposes outlined in their respective privacy policies.

More Information

Hopefully that has clarified things for you and as was previously mentioned if there is something that you aren't sure whether you need or not it's usually safer to leave cookies enabled in case it does interact with one of the features you use on our site.
However, if you are still looking for more information, then you can contact us through one of our preferred contact methods:
Email: enquiries@alzheimersresearchuk.org
Phone: 0300 111 5555

Any information provided to the Dementia Research Infoline will be treated confidentially, in accordance with Data Protection Law and this Privacy Notice.

Every enquiry to the Infoline will be logged using an anonymous call logging system. This allows us to track the volume and nature of enquiries to help us make the service as effective as possible.

Personal information provided to the Dementia Research Infoline will only be used to help us deal with your enquiry. All data collected for this purpose is destroyed within a maximum of six months from collection.

Any information that is provided to Infoline staff during registration into Join Dementia Research is dealt with in accordance with the Privacy Notice outlined on the Join Dementia Research website.

We may ask you whether you would like to be kept up-to-date with our work and how you can financially support us and allow you to opt-in to a range of communications from Alzheimer’s Research UK. If you do, we will process your information as outlined in the sections above.

Information provided when making a contribution to the ‘Memory Board’ on the ‘Dementia Explained’ website will be confidential and used solely for the purposes of making the submission.

Only the first name and age of the child/children involved with the submission will be publicly visible. If you would like the submission to be completely anonymous please don’t enter this information.

We will make contact with you to verify information about your submission.

A Place to Remember provides a virtual space for you to remember a loved one. On the website we will therefore publically display a Google image of the co-ordinates you provide, your message and the name of the loved one you have entered alongside a photograph if you have chosen to upload one.

We will also keep a record of the co-ordinates you provide, the name of your loved one and your name, address and a record of your gift, if you have chosen to give one as part of our internal database. This information will be subject to our internal data proceedures as outlined throughout this notice.

Download our GDPR statement that explains how Alzheimer’s Research UK Research Team handles personal data about our grant applications and the rights that applicants have under data protection law. In this Notice, we refer to this type of information as “Applicant Data”.

This statement applies to applications submitted via Grant Tracker. It also applies to applications summitted via other means, such as by post and email.

Download GDPR statement