Living with frontotemporal dementia can be very difficult. Many people affected by the disease may have jobs, family and financial responsibilities.
As well as supporting the person with FTD, it’s important that family and carers can also access practical and emotional support for themselves.
Rare Dementia Support runs national groups providing support and information for people with FTD, their families and carers. Contact details can be found online at raredementiasupport.org
The Rare Dementia Support Network were vital in supporting me following my mum's diagnosis of FTD.
Online information about FTD can also be found at the FTD talk website at ftdtalk.org
You can also speak to your doctor or nurse for practical and medical advice.
Admiral Nurses, who are dementia specialist nurses can be contacted on 0800 888 6678 or firstname.lastname@example.org
There are other support organisations that offer help and advice about dementia.
For more information, contact Alzheimer’s Research UK’s Dementia Research Infoline on 0300 111 5111 or email@example.com
There are other support organisations that offer help and advice about dementia. For more information, visit our page ‘Support for people affected by dementia’.
Support for people affected by dementia
This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.
Order health information
Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.
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