Take part in dementia research

With the first disease modifying treatments for dementia on the horizon, we’re at a turning point and getting closer to changing the lives of people affected by dementia forever.

We wouldn’t be here without people that volunteer to take part in research and clinical trials.

Research is the only way to understand more about diseases like Alzheimer’s, to find more effective ways to diagnose it, prevent it and to work towards a cure. And we need people like you to get involved!

If you’d like to find out about taking part in research, register below and we’ll contact you to give more information and to help you get involved.

Alternatively, you can register yourself online to Join Dementia Research here.

One percent of people who can, take part in dementia research.

 People with dementia, their carers, and people without dementia are all needed to take part in vital dementia research studies.

Just 1 per cent of people who could take part in vital dementia research do so. 

These studies will be the building blocks for a world free from the fear, harm and heartbreak of dementia. More than ever, we need people to sign up for clinical trials and help find a cure for dementia.

With almost one million people living with dementia in the UK, and it being the leading cause of death we must take action now.

People who choose to take part in research make a huge difference, and often they find it benefits them to by:

  • helping them find out more about their condition.
  • having extra contact with dementia professionals.
  • the sense of helping others and future generations.
  • understanding more about dementia risk factors and prevention.

Find out more about taking part in research, and how you can play a role in helping scientists change the ending for people with dementia. Register below to hear more.

It takes three years to recruit people for a dementia clinical trial.

Please complete the short form below if you are interested in getting involved in dementia research or want more information before you decide.

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Your data will be used to contact you about taking part in research, we will attempt to call you within 10 working days and make 3 attempts to reach you. The data you submit on this form will not be shared with any third party and you can change how we contact you at any time. Privacy policy.

Watch our film to learn more about taking part in dementia research.

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What might a study involve?

When you register, you provide details about your health, age and contact preferences. This information is used to match you to studies that you are suitable to take part in, both online and face-to-face, helping researchers find volunteers for their studies.

Anyone over the age of 18, with or without a dementia diagnosis can sign-up to take part. Join Dementia Research is not a research study itself but a place to find out what studies you can take part in and enrol to take part. Signing up to the register is not a commitment to take part in any particular study, it just allows research studies to find willing volunteers.

Find out more and register to Join Dementia Research.

If you have questions about a specific research study that you would like to take part in, or about what might be involved in taking part please contact the Dementia Research Infoline on 0300 111 5111 or infoline@alzheimersresearchuk.org.

Volunteer experience

As a volunteer without dementia, you can read Jude’s blog about her experience of taking part in research. If you are living with dementia and would like to take part in face-to-face research, you usually need someone who knows you well to accompany you to research studies. A person who knows you well can also register on your behalf as your representative, this lets researchers know you have someone to support you to take part in research. You can choose if you’d prefer your representative to receive the communication from Join Dementia Research on your behalf too.

Have you taken part in a dementia research study?

If you have taken part in dementia research and would like to share your story to inspire others or help shape our work please get in touch via stories@alzheimersresearchuk.org

 

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Getting involved in research

Find more about the different types of research and what might be involved for a volunteer in dementia research in our booklet.

This information was updated in August 2023 and is due for review in August 2025. It does not replace any advice that doctors, pharmacists, or nurses may give you. Please contact us at infoline@alzheimersresearchuk.org if you would like a version with references.

 

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