Brothers Jordan and Cian receive Prime Minister’s ‘Points of Light’ award in recognition of fundraising achievements

Jordan and Cian Adans at a football match at Wembley stadium. They are smiling with their fists raised to the air, wearing England shirts.

By Alzheimer's Research UK | Friday 12 April 2024

Last week, inspirational brothers Jordan and Cian Adams were recognised with an award from Downing Street for their tireless support of dementia research.

Jordan and Cian, who call themselves the ‘FTD brothers’, have raised more than £54,000 for Alzheimer’s Research UK to date.

And they have now been recognised with Prime Minister Rishi Sunak’s ‘Points of Light’ award for this, and for raising the profile of a rare form of dementia called frontotemporal dementia (FTD), which has heavily impacted their family.

A rare form of dementia

Their mother Geraldine was diagnosed with FTD at the age of 47. She passed away in 2016 aged just 52 when they were teenagers.

It was discovered that Geraldine’s FTD was caused by a rare faulty gene and, after genetic testing, the brothers have discovered they both inherited this gene.

This means they will develop FTD at around the same age their mother did.

Familial or inherited forms of dementia are very rare with just one in 10 cases of FTD are thought to be caused by a faulty gene passed down through families, like Jordan and Cian’s.

‘A licence to live’

Jordan said the discovery has given him a ‘license to live’ and is choosing to put this knowledge to good use with his brother and raise an incredible £1million in their lifetimes.

To date, Jordan has taken on a number of running challenges to raise money for Alzheimer’s Research UK, including the Virtual London Marathon in 2020, the London Marathon in 2021 and completing a challenge to run seven marathons in seven days, finishing with the London Marathon in 2022.

Cian followed in his brother’s footsteps by taking on the Warwick Half Marathon and Manchester Half Marathon last year for the charity.

In March, Jordan was a guest speaker at Alzheimer’s Research UK’s annual conference in Liverpool.

The day after he attended 10 Downing Street for an event celebrating the progress of the government’s Dame Barbara Windsor Dementia Mission.

Next stop… London Marathon!

They aren’t stopping there though as next week will see the brothers running the 2024 London Marathon together.

Then in September, they will undertake their biggest challenge to date by running from John O’Groats to Land’s End.

 

Jordan lifting Cian off the ground after finishing a running race. They are outside, both smiling and wearing sports kit.

 

Jordan said:

“With the discoveries made so far and the promising news about new treatments on the horizon, I firmly believe that we are at the beginning of the end for dementia.

“That is why I am so passionate about supporting Alzheimer’s Research UK.

“It is why I share my story to raise awareness and why I take on running challenges to raise vital funds. I am so proud to be able to continue this journey with my brother Cian.

“It is a real honour for Cian and I to receive an award recognising our efforts to raise awareness and encourage people to get behind dementia research and help scientists find a cure sooner.”

Songaminute man

Jordan and Cian’s award comes a week after Simon McDermott, who works at Alzheimer’s Research UK, was also awarded a Points of Light award for raising more than £150,000 for dementia charities with his dad Ted, who is living with the condition.

Before his diagnosis Ted was a professional singer and known as The Songaminute Man.

Selfie of Simon McDermott and his dad, Ted. Both are seated indoors, smiling at the camera.Under this name, Simon used their shared love of singing to connect, creating viral carpool karaoake-style YouTube videos, which captured the hearts of thousands and raised the profile of the condition.

The father and son duo brought out two albums to raise money for dementia charities.

Simon’s next challenge will be to take on Manchester Marathon as part of a relay.

The ‘Points of Light’ award recognises worthy volunteers who have made positive changes in their community.

First established in 1990 by President George H.W Bush, the award has been given to over 7,000 US Points of Light.

The UK programme was then launched in 2014, during David Cameron’s term in residence of 10 Downing Street.

 

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Alzheimer's Research UK