Find out about how you can take part in dementia research and the vital role that volunteers play in helping scientists make breakthroughts possible.

Join Dementia Research

Volunteers, both with and without dementia, who take part in research studies or clinical trials play an essential role in helping scientists and doctors to understand dementia, and find new ways to prevent, diagnose and treat the diseases that cause it.

Join Dementia Research is a service that allows you to register to take part in dementia research studies across the UK. Information you provide when you register is used to match you up with suitable studies. This means you can take part right away, helping researchers find willing volunteers for their research. There plenty of oppertunities to take part, including online and face to face. Play your part in making breakthroughs possible by signing up today.

Sign up to Join dementia research

To find out more, visit www.joindementiaresearch.nihr.ac.uk or call the Dementia Research Infoline on 0300 111 5 111.

Other ways to get involved

As well as looking for volunteers to take part in studies, scientists also need volunteers to provide input on how best to design and carry out their research. This is called patient public involvement, or PPI. You can read more about why PPI is so important here.

People in Research is a database listing research projects and organisations that are looking for the public to get involved in their work. This could include advising on how research is carried out, reviewing ethics and grant proposals, assisting with running studies and more. Visit www.peopleinresearch.org or contact them on 02380 651088.

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Getting involved in research

Find out about the different types of research being conducted, who can get involved and why more volunteers are needed to take part.

Brain donation

Alzheimer’s Research UK, in partnership with Alzheimer’s Society, with generous service support costs from the MRC, is funding a network of brain bank centres across England and Wales called Brains for Dementia Research. Donated brain tissue is vital for scientific research into dementia and this initiative is more than a simple organ donation scheme, as donors are assessed every one or two years with memory and thinking tasks. This means donors are not only leaving a generous gift after their death but also providing important information about their symptoms and behaviour during later life.

Brains for Dementia Research is reaching capacity for new donors. For more details visit the website at www.brainsfordementiaresearch.org.uk

You can contact the Human Tissue Authority if you would like to find out more about donating your brain to research on 020 7269 1900 (Monday to Friday, 9am to 5pm), or find out more here                            www.hta.gov.uk/guidance-public/brain-donation

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