Support
young onset dementia
The impact of young onset dementia can be significant – people are often working, have financial commitments like a mortgage, and may have children still living at home.
In this section:
What support is available for people with young onset dementia?
There are organisations that offer advice, information, care, and practical and emotional support for everyone affected by dementia and their loved ones.
Over time, dementia symptoms will get worse, and someone will require more support. The speed of change in symptoms can vary widely from person to person.
Everyone with dementia and their carer is entitled to an assessment that establishes their support needs and suggests how those needs can be met.
Dementia UK’s specialist Admiral Nurses offer practical advice and support to people affected by dementia and their families.
They can be contacted on 0800 888 6678 or helpline@dementiauk.org
If you prefer, you can book a phone or video appointment at a time to suit you.
To find out about face-to-face Admiral Nurse services in your area, please contact the Helpline.
Young Dementia Network is an online influencing community for everyone living with, working with or interested in young onset dementia.
Free to join, the Network brings people together to increase knowledge, understanding and awareness of young onset dementia.
It campaigns for improved support by calling for the needs of younger people with dementia to be met in national and local dementia plans and policies.
If you have questions about young onset dementia, symptoms, diagnosis, treatment, or about taking part in research, you can contact the Dementia Research Infoline on 0300 111 5111 or infoline@alzheimersresearchuk.org
Having a parent with young onset Alzheimer's can make the world a very lonely place and knowing there are other people out there who understand is vital.
Megan, whose dad Paddy was diagnosed with young onset Alzheimer's disease when he was 55 and she was 14.
Downloads
Dementia information
This booklet aims to give an introduction to young onset dementia. It’s for anyone who might be worried about themselves or somebody else.
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PDF, 3.8 MB, 17 pages
Order health information
Alzheimer's Research UK has a wide range of information about dementia. Order booklets or download them from our online form.
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This information was updated in March 2026 and is due for review in March 2028. It was written by Alzheimer's Research UK's Information Services team with input from lay and expert reviewers. Please get in touch if you'd like a referenced copy.
This information is produced with support from The Perfume Shop who had no input into the content.
