The impact of young onset dementia can be significant – people are often working, have financial commitments like a mortgage, and may have children still living at home. There are organisations that offer advice, information, care, and practical and emotional support.

Alzheimer’s Research UK’s Dementia Research Infoline can answer questions about young onset dementia, including those about symptoms, diagnosis and treatments. You can contact the team on 0300 111 5111 or infoline@alzheimersresearchuk.org

Dementia UK’s dementia specialist Admiral Nurses offer practical advice and support to people affected by dementia and their families. They can be contacted on 0800 888 6678 or helpline@dementiauk.org You can ask them about services available in your area too.

The Young Dementia Network is a free-to-join influencing community of people with young onset dementia, their families and professionals from health and social care, and the voluntary sector. Members work to improve support through creating resources, sharing information, offering opportunities for involvement and collaboration, and promoting a better understanding of young onset dementia. Find out more at www.youngdementianetwork.org

Megan O Hanlon

Having a parent with young onset Alzheimer's can make the world a very lonely place and knowing there are other people out there who understand is vital.

- Megan, whose dad Paddy was diagnosed with young onset Alzheimer's disease when he was 55 and she was 14

Young onset dementia

This leaflet aims to give an introduction to young onset dementia. It’s for anyone who might be worried about themselves or somebody else.

YOD
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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in March 2022 and is due to be reviewed in March 2024, it was written by Alzheimer’s Research UK’s Information Services team with input from the Young Dementia Network and lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.

 

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Dementia Research Infoline

Quesitons about dementia? Keen to get involved in dementia research studies?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111

infoline@alzheimersresearchuk.org