Alzheimer’s Research UK has funded over £159 million of dementia research, and supports people to take part in vital studies.

People with dementia and their loved ones can take part in research. If you’re interested in taking part and would like to find out more, register to the Join Dementia Research service, which is run by the NHS. This will match you to research studies you are suitable for, so you can see what type of research you could take part in. You can register and find out more here at Join Dementia Research. You can also register over the telephone on 0300 111 5111.


Alzheimer’s Research UK has funded over £160 million of pioneering research into many different kinds of dementia, including diseases that cause young onset dementia.

Several studies are looking at the genetics of young onset dementia, and another is working with people with young onset dementia, including FTD and Alzheimer’s, to follow their health over several years. Our studies are helping to increase understanding of the disease, improve diagnosis and develop potential new treatments.

Young onset dementia

This leaflet aims to give an introduction to young onset dementia. It’s for anyone who might be worried about themselves or somebody else.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in March 2022 and is due to be reviewed in March 2024, it was written by Alzheimer’s Research UK’s Information Services team with input from the Young Dementia Network and lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.

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Dementia Research Infoline

Want to know more about dementia research? Keen to volunteer in dementia research studies?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111