Alzheimer’s Research UK has funded over £194 million of pioneering research into different kinds of dementia, including young onset dementia 

Several studies are looking at the genetics of young onset dementia, and another is working with people with young onset dementia, including FTD and Alzheimer’s to follow their health over several years. Our studies are helping to increase understanding of the diseases that cause young onset dementia, improve diagnosis and develop potential new treatments. 

Melissa W

This is not a normal part of ageing. It is a disease and it's one where there hasn't been a treatment in time for my mum, which is why I support Alzheimer's Research UK - because they are so focussed on finding a cure.

- Melissa, whose mum lives with young onset Alzheimer's

People with and without dementia, as well as carers, have a vital role to play in helping scientists understand more about diseases like Alzheimer's, and to test new treatments, therapies and methods of diagnosis.

You can register to find out which research studies you may be suitable to take part in via Join Dementia Research.

You can also register your interest and find out more about what might be involved in a research study by clicking the button below.

Jane C

It’s too late for Mum, but for our generation and our children’s generation, I can’t bear the thought of another loved one having Alzheimer’s. With the work Alzheimer’s Research UK is doing there will be change. We really need to step up research on dementia to stop so many families going through this heartbreak.

- Jane, whose mum was diagnosed with young onset Alzheimer's

With your support, we promise we will not stop until dementia can no longer destroy lives.

We are Alzheimer’s Research UK.

We exist for a cure.

Young onset dementia

This booklet aims to give an introduction to young onset dementia. It’s for anyone who might be worried about themselves or somebody else.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

Dementia Research Infoline

Want to know more about dementia research? Keen to volunteer in dementia research studies?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111

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This information was updated in March 2024 and is due to be reviewed in March 2026. It was written by Alzheimer’s Research UK’s Information Services team with input from the Young Dementia Network and lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.

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