Living with dementia with Lewy bodies can present challenges, but there are organisations that can offer help and support.


The Lewy Body Society provide support and advice for people with DLB, their families and carers. You can find information at

Helpline support, offering practical tips and medical advice is provided by Admiral Nurses on 0800 888 6678 or

Parkinson’s UK also provide information and support about DLB and PDD. Visit or contact them on 0808 800 0303 or

For contact details of other organisations offering support and advice visit our page support for people affected by dementia.

You can also speak to your doctor or nurse about local support services for people with dementia.


Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in December 2021 and is due to be reviewed in December 2023, it was written by Alzheimer’s Research UK’s Information Services team with input from lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.


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Dementia Research Infoline

Want to know more about dementia? Keen to find out how you can get involved in research?

Contact the Dementia Research Infoline:

9am-5pm, Monday to Friday

0300 111 5 111