Support
Dementia information
Living with dementia with Lewy bodies can present challenges, but there are organisations that can offer help and support.
In this section:
If your partner or loved one has DLB, it is important to make time in the week to do things for yourself, and spend time with friends, as well as your partner or loved one.
Organisations that offer help and support
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Dementia Research Infoline
If you have questions about dementia symptoms, diagnosis, treatment, or about taking part in research you can contact the Dementia Research Infoline on 0300 111 5111 or infoline@alzheimersresearchuk.org
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Admiral Nurses
Helpline support, offering practical tips and medical advice is provided by Admiral Nurses on 0800 888 6678 or helpline@dementiauk.org
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Parkinson’s UK
Parkinson’s UK also provides information and support about DLB and PDD. Visit www.parkinsons.org.uk or contact them on 0808 800 0303 or hello@parkinsons.org.uk -
The Lewy Body Society
The Lewy Body Society provides support and advice for people with DLB, their families and carers. You can find information at www.lewybody.org
Downloads
Dementia information
Read more about treatments for dementia, including information on treating depression, anxiety and agitation and for information on antipsychotics.
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PDF, 577 kB, 13 pages
Find out more
You can find out more about current diagnosis and treatments for each type of dementia on the following pages:
Order health information
Alzheimer's Research UK has a wide range of information about dementia. Order booklets or download them from our online form.
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This information was updated in December 2025 and is due to be reviewed in December 2027. It was written by Alzheimer’s Research UK’s Information Services team with input from lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.
This information is produced with support from The Perfume Shop who had no input into the content.
