Living with DLB can present challenges, but there are organisations that can offer help and support.

The Lewy Body Society, in partnership with Parkinson’s UK, provides support and advice for people with DLB, their families and carers. You can contact a helpline advisor on 0808 800 0303 or by emailing and find information at and

For contact details of other organisations offering support and advice, visit our section on support for people affected by dementia. You can also speak to your doctor or nurse.

Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.


Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in December 2019 and is due for review in December 2021. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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Dementia Research Infoline

Want to know more about current research? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111