Living with DLB can present challenges, but there are organisations that can offer help and support.

The Lewy Body Society provides support and advice for people with DLB, their families and carers. You can contact them on 01942 914 000 or by emailing and find information at

Parkinson’s UK can help with questions about dementia in Parkinson’s disease and dementia with Lewy bodies. They can also provide care advice, emotional support, financial and legal information. They also have Parkinson’s disease specialist nurses who provide medical advice and support. You can contact them on 0808 800 0303 or by emailing

For contact details of other organisations offering support and advice, visit our section on support for people affected by dementia. You can also speak to your doctor or nurse.

Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.


Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in December 2019 and is due for review in December 2021. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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Dementia Research Infoline

Want to know more about current research? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111