Alzheimer’s disease has a huge impact on someone’s life, as well as on their family and carers. There is practical and emotional support available to help.

Alzheimer’s has a huge impact on someone’s life, as well as on their family and carers. There is practical and emotional support available to help.

Accessing services and support can make a real and positive difference to someone with dementia and their family. Some services are provided by local authorities, others can be arranged through your doctor. The type of services available may vary depending on where you live, but can include home, day and respite care.

You may need to think about legal and financial matters and seek advice on the best approach for you. If you wish, you can arrange for a loved one to make financial, legal and health decision on your behalf, this is called Lasting Power of Attorney (LPA).

If you drive and are diagnosed with Alzheimer’s you must notify the Driver and Vehicle Licensing Authority (DVLA) and your insurance company. You may not have to stop driving straight away, and you can discuss this further with your doctor.

Many organisations provide information, support and care services to people affected by dementia, as well as families and carers. Click button below for more information.

There are also organisations that offer support specifically to those with early-onset or genetically inherited forms of Alzheimer’s.

The FAD support group is for families affected by autosomal dominantly inherited Familial Alzheimer’s Disease (FAD). The group is run by Rare Dementia Support, and offers information, advice and social opportunities for people with familial Alzheimer’s disease and their families.

YoungDementia UK provides information, advice and support for people under 65 diagnosed with dementia, their family and friends.

Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in June 2020 and is due for review in June 2022. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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Dementia Research Infoline

Want to know more about current research? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

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0300 111 5 111

infoline@alzheimersresearchuk.org