Alzheimer’s has a huge impact on someone’s life, as well as on their family and carers. There is practical and emotional support available to help everyone affected.

Local authorities provide some practical support services and should arrange an assessment of care needs following a diagnosis. The type of services available may vary depending on where you live, but can include home, day, and respite care. Access to specialist healthcare can be arranged through your doctor if needed.

You may need to think about legal and financial matters and seek advice on the best approach for you. If you wish, you can arrange for a loved one to make financial, legal and health decisions on your behalf, this is called Lasting Power of Attorney (LPA).

If you drive and are diagnosed with Alzheimer’s you must notify the Driver and Vehicle Licensing Authority (DVLA) and your insurance company. You may not have to stop driving straight away, and you can discuss this further with your doctor.

Many organisations provide information, support and care services to people affected by dementia, as well as families and carers. For more information see here:

There are also organisations that offer support specifically to those with young onset or genetically inherited forms of Alzheimer’s.

The FAD support group is for families affected  inherited Familial Alzheimer’s Disease (FAD). The group is run by Rare Dementia Support, and offers information, advice and social opportunities for people with familial Alzheimer’s disease and their families.

Dementia UK provides information, advice and support for people under 65 diagnosed with dementia, their family and friends.

Michael McCabe

Getting the right support and advice is so important. My wife's symptoms have been eased by singing in choirs and other groups, as well as attending a support group. We have also enjoyed well organised, dementia-friendly holidays.

- Michael, whose wife Susan lives with Alzheimer's

Have you or a loved one recently been diagnosed with Alzheimer's disease?

If you have been diagnosed with Alzheimer's disease in the last two years and would like to share your story to help shape our work please get in touch via stories@alzheimersresearchuk.org

Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

Dementia Research Infoline

Want to know more about Alzheimer's? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

9am-5pm, Monday to Friday

0300 111 5 111

infoline@alzheimersresearchuk.org

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This information was updated in May 2024 and is due to be reviewed in May 2026. It was written by Alzheimer’s Research UK’s Information Services team with input from lay and expert reviewers. Please get in touch if you’d like a version with references or in a different format.

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