Alzheimer’s disease has a huge impact on someone’s life, as well as on their family and carers. There is practical and emotional support available to help.

Accessing services and support can make a real and positive difference to someone with dementia and their family. Some services are provided by local authorities, others can be arranged through GPs. The type of services available may vary depending on where you live, but can include home, day and respite care.

You may need to think about legal and financial matters and seek advice on the best approach for you. A diagnosis of Alzheimer’s does not mean you automatically have to stop driving, but you will need to notify the Driver and Vehicle Licensing Authority (DVLA) and your insurance company. You can discuss this further with your doctor.

Many organisations provide information, support and care services to people affected by dementia, as well as families and carers. Some of these organisations are listed on our caring for someone with dementia page.

There are also organisations that offer support specifically to those with early-onset or genetically inherited forms of Alzheimer’s.

The FAD support group is for families affected by autosomal dominantly inherited Familial Alzheimer’s Disease (FAD). The group is run by Rare Dementia Support, and offers information, advice and social opportunities for people with familial Alzheimer’s disease and their families. For more information please contact ivanna.pavisic.15@ucl.ac.uk.

YoungDementia UK provides information, advice and support for people under 65 diagnosed with dementia, their family and friends.

Support for people affected by dementia

This booklet is for people affected by dementia, including family, friends and carers. It lists organisations offering help, advice, information and support.

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Order health information

Alzheimer’s Research UK has a wide range of information about dementia. Order booklets or download them from our online form.

This information was updated in May 2018 and is due for review in May 2020. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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Dementia Research Infoline

Want to know more about current research? Keen to get involved in research projects?

Contact the Dementia Research Infoline,

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0300 111 5 111

infoline@alzheimersresearchuk.org