Alzheimer’s Research UK’s Children’s Resources Project

Alzheimer’s Research UK is the UK’s leading dementia research charity. As well as funding world-class research with the mission to defeat dementia, we also help people and families affected by this devastating condition.

As part of our mission, we are creating online resources for children who are affected by dementia in their family. In order to create the best experience, we have a few questions about these resources that would benefit greatly from your input.

kids-and-teenagersHaving someone close with dementia can be a very confusing time for children. Trying to understand the personality changes and the fact that the person they care about may not recognise them anymore can be a constant struggle. Many children feel angry and confused about the condition and there is a real need for a resource to help them through this difficult time.

We have created two different questionnaires, one for younger children and one for older children. There is no specific age bracket for the two children’s questionnaires, but the language differs to make one easier to understand for younger children. Please feel free to choose the one that you and your children find the most appropriate for you.

There is also a questionnaire for parents and guardians and we would be very grateful if you could also fill this in.

We would like the resources to be child-focused and child-led; therefore we would like to include some of the children’s responses to this survey in the resources we produce. If you are happy for your child’s experiences to be shared in this way (we will only use a first name and age), please complete the permission form at the end of each survey.

Sharing experiences is an important way to help children understand and cope with the situation that is happening around them. It would also be useful for them to share their experiences so that other children affected by dementia in their family know they are not alone.

Thank you for helping us to defeat dementia.