This is why I decided to raise both awareness and funding for Alzheimer Research UK, in memory of my auntie and in enormous gratitude to my twin brother.
Alzheimer’s is horrific, and it’s something you wouldn’t wish on anyone. And that’s why I decided to raise funds and awareness for Alzheimer’s Research UK with this song – a charity I’m proud to support. Backing their work gives us the best chance of fighting it. It’s so important.
I want to tell our story of early-onset dementia. It is important to me because so many people think of dementia as a condition that affects the elderly and makes them forgetful. The truth is that dementia can strike at any time and its effects on the person and their family can be shattering.
Everybody has a story about how they got into cycling, what it means to them or why they do it. When we find ourselves moved to raise money for a cause, this story becomes a raison d’etre and history becomes motivation.
Sunday 5 November is International Volunteer Managers Day and here at Alzheimer’s Research UK, we’re celebrating the valuable support our volunteer managers give to all our amazing volunteers who really do make a difference.
I’m sure I’ll meet some other amazing people on the volcanoes. I don’t yet know how I’m going to trek up five spires of fire, but I will learn.
We have seen a lot in the news over the last few months about recently published dementia research studies. This might have got you thinking, how do I get involved in research?
My mum can no longer do anything for herself. She needs someone to get her dressed and out of bed, feed her, remind her to swallow when she’s eating or drinking, brush her teeth, wash her hair, change her and push her wheelchair. This is the reality of dementia.
When people hear the word Alzheimer’s, many envision an elderly person shut away in the depths of a care home. As a 25-year-old, I was all too aware that young people assume that it’s a natural part of ageing, and nothing for them to worry about yet. But it’s not, it’s a brain disease that strips everything away from the individual – and it doesn’t just affect the elderly.
Adele Lootes is the primary carer for her partner Lance, who was diagnosed with behavioural variant frontotemporal dementia four years ago, at the age of 45. Adele describes what life has been like, living with Lance.