As we all adapt to a temporary, extraordinary new way of living, we wanted to update you on how we’re adapting at Alzheimer’s Research UK, and the potential impact of COVID-19 on dementia research.
The COVID-19 Symptom Tracker app, developed by King’s College London, is joining forces with the UK’s largest health-based charities. The aim is to reach people most at risk of COVID-19, including those with pre-existing health conditions such as dementia, diabetes, heart disease and those over the age of 70.
People with dementia are likely to be particularly vulnerable to this virus so it is especially important that they and those around them take what steps they can to avoid transmission.
We’re acutely aware of the impact the outbreak will be having on people with dementia and their families, exacerbating an already unprecedented situation. Our hearts go out to everyone in such circumstances.
The Early Detection of Neurodegenerative diseases (EDoN) initiative is spearheaded by Alzheimer’s Research UK and brings together 14 leading research and support organisations, working to develop innovative ways to pick up these diseases in the brain years before the symptoms of dementia start.
To accelerate progress towards life-changing treatments, we must also change the conversation about dementia.
With our survey, developed with academics from the University of Edinburgh, we aim to gather opinions from as many people as possible. This will help us to pick out trends in opinion, and learn whether different groups of people tend to value different things.
Awareness and understanding of dementia in BAME communities is also lower than in the UK population as a whole. Some South Asian languages don’t have a word for dementia, and this can lead to myths about what causes it.
Let’s play 20 questions. Well 22. Because in fewer than two dozen questions, we’re aiming to find out as much as we can about what motivates you, and thousands of others like you, to support our work at Alzheimer’s Research UK.