Our Policy Insight and Experience Panel help us to stay on top of the key issues that matter most to people affected by dementia.
Our Policy Insight and Experience Panel is a community of individuals from across the UK with lived experience of dementia. The panel informs and shapes our policy and public affairs work to ensure that dementia research and the delivery of life-changing new medicines remains high on the political agenda.
Their experiences, ideas and opinions help us to stay on top of the key issues that matter most to people affected by dementia, increasing decision-makers’ awareness of the impact of dementia and driving policy change across the UK.
Together, we make an impact.
Some of the ways that the panel have made a significant impact to date
- Speaking to MPs about the impact of dementia in parliament – crucial to increasing knowledge amongst MPs about dementia.
- Meeting with the Royal Society of Public Health to contribute to our joint report on how to reduce people’s risk of dementia.
- Taking part in interviews to help us understand how more people can be encouraged to get involved in clinical research - leading to the publication of our report “Translating Science into Breakthroughs: the future of late-stage dementia clinical trials in the UK.”
Please note: We are not currently recruiting for this group. However we’re always looking for more people to join our campaigner team. From signing a petition to writing to your MP, there’s something for everyone!
“I really felt at long last I could do something to help people recognise that dementia is a terminal neurodegenerative disease, and that we must do everything we can to stop it. The experience has been awesome. Everyone is working towards the same goals, and this shared vision is incredibly empowering.”
- Kathy, who has been involved with the panel since 2019