Frontotemporal dementia

Frontotemporal dementia or FTD (sometimes called Pick’s disease) is a relatively rare form of dementia.

Living with frontotemporal dementia can be difficult. Younger people affected by the disease may be working, and have family and financial responsibilities.

As well as supporting the person with FTD, it’s important that carers also access practical and emotional support for themselves.

Rare Dementia Support runs three national support groups providing support and information for people with FTD, their families and carers: the Frontotemporal Dementia Support Group, the Primary Progressive Aphasia Support Group and the Familial Frontotemporal Dementia Support Group.

Regional contact details can be found on the Rare Dementia Support website or by ringing 07341 776 317 (FTD), 07388 220 355 (PPA) or 07592 540 555 (familial FTD). Online information about FTD can also be found at the FTD talk website at www.ftdtalk.org

There are other support organisations that offer help and advice about dementia. For contact details, visit our caring for someone with dementia page. You can also speak to your doctor or nurse for advice.

This information was updated in January 2018 and is due for review in January 2020. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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