Dementia with Lewy bodies

Dementia with Lewy bodies is the third most common cause of dementia.

Living with DLB can present its challenges, but there are support organisations that can offer you help.

The Lewy Body Society, in partnership with Parkinson’s UK, provides support and advice for people with DLB, their families and carers. You can contact a helpline advisor on 0808 800 0303 or by emailing [email protected] and find information at and

For contact details of other organisations offering support and advice, visit our section on caring for someone with dementia. You can also speak to your doctor or nurse.

This information was updated in January 2018 and is due for review in January 2020. It does not replace any advice that doctors, pharmacists or nurses may give you. Please contact us if you would like a version with references.

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