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London woman with rare dementia to share experience at dedicated event

Posted on: 25th May 2018

Grandmother Trina Armstrong will talk about her experience of living with a rare form of dementia at this year’s Alzheimer’s Show at London Olympia. Trina, who lives with and is supported by her husband Graeme, was diagnosed with posterior cortical atrophy (PCA) in 2013. They will share their journey…

Four daughters carry out Instagram takeover to raise profile of dementia for World Alzheimer’s Day

Posted on: 21st September 2017

The Hewitt sisters share candid posts on Alzheimer’s Research UK Instagram account about how they operate a ‘tag team’ to care for their mum, Laura, full-time despite all have busy lives with their careers and families. Laura, 61, is living with posterior cortical atrophy, a rare form of dementia. Scans…


Posted on: 5th July 2017

Alzheimer’s Research UK has funded over £3.7 million of pioneering research into posterior cortical atrophy, and was one of the first charities to invest consistently in this important area of research. Our studies are helping to increase understanding of the condition, improve diagnosis and work towards potential new treatments. We…


Posted on: 5th July 2017

Researchers believe the symptoms of PCA are caused by changes in the brain cells that process visual information from our eyes. These cells are at the back of the brain. In PCA, it is not clear why the disease affects these areas of the brain rather than the areas affected…


Posted on: 5th July 2017

A diagnosis of dementia will affect people in different ways. With the right information and support, people can carry on with day-to-day life and the things they enjoy doing for some time. Talking to other people in the same situation can also help. The PCA Support Group sends out newsletters…


Posted on: 5th July 2017

While there are no treatments specifically for PCA, medicines that are given to people with Alzheimer’s disease may be offered to those with PCA. These are: donepezil (Aricept) rivastigmine (Exelon) galantamine (Reminyl) memantine (Ebixa or Axura) These drugs work by helping nerve cells in the brain to communicate with each…


Posted on: 5th July 2017

Getting the right diagnosis is important so that people can get help and support. At first, people with PCA might think they have something wrong with their eyes and visit their optician. The optician may find that they have perfectly healthy eyes, or people could be wrongly given glasses that…


Posted on: 5th July 2017

The problems caused by PCA can vary from person to person and can change over time. People may have problems with: Vision Things may appear to have an unusual colour, or to move when they are still. A black object can look like a hole. People may still see an…


Posted on: 5th July 2017

PCA is caused by damage to the brain cells at the back of the brain that make sense of what our eyes are seeing. Alzheimer’s disease is most often the cause of the brain cell damage in PCA. PCA is sometimes called a visual form of Alzheimer’s. However, the early…

Novelist Valerie Blumenthal is made Champion of Alzheimer’s Research UK

Posted on: 17th August 2016

Brave campaigner and novelist Valerie Blumenthal has been made a Champion of Alzheimer’s Research UK, for raising the profile of a rare form of dementia which she is living with. Valerie has shared her experience of dementia with the national media and as a guest speaker at Alzheimer’s Research UK’s Women…

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