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Devoted daughter to run half marathon for mum with rare form of dementia

Posted on: 9th October 2018

Hairdresser Tilly Hewitt is taking on the Royal Parks Half Marathon this Sunday (October 14) to raise vital funds for Alzheimer’s Research UK after watching her 62-year-old mum deteriorate with dementia. Tilly and her three sisters, from Barnet, look after their mum Laura around the clock as she needs help…

Man with rare dementia to run Kew Gardens 10k with daughter for research

Posted on: 10th September 2018

A man who has a rare form of dementia that affects his vision is taking on a 10km run with his daughter to raise money for pioneering research. Peter Mumford, from Ross-on-Wye in Herefordshire, who has posterior cortical atrophy (PCA), is set to run the Kew Gardens 10k at the…

North London couple recognised as Champions for their tireless charity work

Posted on: 17th August 2018

Dedicated supporters Graeme and Trina Armstrong have been made Champions of Alzheimer’s Research UK in recognition of their continued support as speakers and campaigners for dementia research. This accolade recognises the couple’s exceptional support as spokespeople for the charity since they came on board as media volunteers in 2016. They…

London woman with rare dementia to share experience at dedicated event

Posted on: 25th May 2018

Grandmother Trina Armstrong will talk about her experience of living with a rare form of dementia at this year’s Alzheimer’s Show at London Olympia. https://www.youtube.com/watch?v=rAVUApnsk4M&t=115s Trina, who lives with and is supported by her husband Graeme, was diagnosed with posterior cortical atrophy (PCA) in 2013. They will share their journey…

Four daughters carry out Instagram takeover to raise profile of dementia for World Alzheimer’s Day

Posted on: 21st September 2017

The Hewitt sisters share candid posts on Alzheimer’s Research UK Instagram account about how they operate a ‘tag team’ to care for their mum, Laura, full-time despite all have busy lives with their careers and families. Laura, 61, is living with posterior cortical atrophy, a rare form of dementia. Scans…

Research

Posted on: 5th July 2017

Alzheimer’s Research UK has funded over £3.7 million of pioneering research into posterior cortical atrophy, and was one of the first charities to invest consistently in this important area of research. Our studies are helping to increase understanding of the condition, improve diagnosis and work towards potential new treatments. We…

Causes

Posted on: 5th July 2017

Researchers believe the symptoms of PCA are caused by changes in the brain cells that process visual information from our eyes. These cells are at the back of the brain. In PCA, it is not clear why the disease affects these areas of the brain rather than the areas affected…

Support

Posted on: 5th July 2017

A diagnosis of dementia will affect people in different ways. With the right information and support, people can carry on with day-to-day life and the things they enjoy doing for some time. Talking to other people in the same situation can also help. The PCA Support Group sends out newsletters…

Treatment

Posted on: 5th July 2017

While there are no treatments specifically for PCA, medicines that are given to people with Alzheimer’s disease may be offered to those with PCA. These are: donepezil (Aricept) rivastigmine (Exelon) galantamine (Reminyl) memantine (Ebixa or Axura) These drugs work by helping nerve cells in the brain to communicate with each…

Diagnosis

Posted on: 5th July 2017

Getting the right diagnosis is important so that people can get help and support. At first, people with PCA might think they have something wrong with their eyes and visit their optician. The optician may find that they have perfectly healthy eyes, or people could be wrongly given glasses that…

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