Forums and groups where we are actively influencing policy on dementia research.
Here are the groups we are currently involved in to help shape and influence policy on dementia research:
The Prime Minister’s ‘Dementia Challenge’ Research Champion Group which was launched in March 2012. The group meets regularly to discuss progress against commitments from the Challenge.
The EU Joint Programme – Neurodegenerative Disease Research (JPND). This international initiative aims to find cures for neurodegenerative diseases (including dementias) and to enable early diagnosis for early targeted treatments. The purpose of the group is to identify common research goals that would benefit from joint action between countries.
The Association of Medical Research Charities (AMRC) who we work with on issues affecting medical research policy.
We set up and chair the Dementia Research Funders Forum. This group brings together key funders of UK dementia research including charities, government agencies and statutory funders, with the aim of coordinating our funding efforts and looking at more collaborative ways of working.
The Dementia Action Alliance is made up of over 100 organisations committed to transforming the lives of people living with dementia in the UK.
We joined with the (US) Alzheimer’s Association and (US) National Institute on Aging to form the International Alzheimer’s Disease Research Funder Consortium, which focuses on information sharing, developing a framework of partnerships for possible joint funding opportunities, development of standard templates, and moving to galvanize Alzheimer’s research to influence the international research agenda.